Health-Related Quality of Life and mental health of families with children and adolescents affected by rare diseases and high disease burden: the perspective of affected children and their siblings
S. Wiegand-Grefe, A. Liedtke, L. Morgenstern, Antonia Hoff, Anikó Csengoe-Norris, J. Johannsen, J. Denecke, C. Barkmann, B. Grolle, A. Daubmann, K. Wegscheider, Johannes Boettcher
BMC Pediatrics